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Warsaw teen living with an autoimmune disease struggles to find medicine she needs during COVID-19 pandemic

Hydroxycholorquine drug becomes an urgent need for a Kosciusko County teen battling juvenile dermatomyositis after coronavirus patients begin to purchase it.

Posted: May 22, 2020 10:35 PM
Updated: May 22, 2020 11:04 PM

WARSAW, Ind. (WFFT) - Katherine Alderfer celebrated her 14th birthday in quarantine with her twin sister, Caroline, on Monday, May 18.

But quarantine isn’t a new concept for Katherine.

Her autoimmune disease has restricted her from playing outside with friends for the past decade.

Kristine Alderfer, Katherine’s mother, says, "It was about ten years ago this weekend when we were having a birthday party and she was super irritable and literally one day could not climb the stairs in our house."

Katherine has juvenile dermatomyositis, a rare childhood autoimmune disease causing the immune system to attack one’s muscles, skin, and other organs.

And causing havoc for Katherine’s family.

If exposed to the sun or ultraviolet rays, her skin flares severely and her muscles become inflamed for days on end.

Katherine also take hydroxychloroquine everyday, an immunosuppressive drug President Donald Trump promoted as a treatment for COVID-19 since March, despite warnings from the U.S. Food and Drug Administration.

Katherine says, "It's been very stressful, because when you're trying to get your medicine and you can't get it...it's hard."

Katherine and her mother say obtaining the drug has become even harder since the COVID-19 pandemic.

And its mention by the president as being a ‘cure’ made them fearful Katherine would no longer have her necessary supply from the pharmacy.

Kristine Alderfer says, “When that started being talked about in the media, we were really nervous about her being able to get her medication.”

Since there hasn’t been a single FDA-approved drug to help with juvenile dermatomyositis, Katherine’s family relies on a pharmaceutical guessing game that costs them hundreds of thousands of dollars a week.

But they’ll continue guessing until an answer for Katherine is found.

Katherine and her family will participate in the Cure JM (juvenile myositis) "Walk Strong Across America" virtual event encouraging particapants to engage in physical activity to support those with the juvenile dermatomyositis and their families.

For more information on the event, click here

Indiana Coronavirus Cases

Data is updated nightly.

Confirmed Cases: 32078

Reported Deaths: 2004
CountyConfirmedDeaths
Marion9268539
Lake3320168
Cass15826
Allen130966
St. Joseph120534
Hendricks113067
Hamilton111592
Johnson1086104
Elkhart105728
Madison58258
Porter49021
Bartholomew48133
Clark46138
LaPorte41522
Tippecanoe3753
Jackson3671
Howard36519
Delaware35735
Hancock32127
Shelby31521
Floyd31438
Boone28835
Morgan26224
Vanderburgh2482
Montgomery23117
White2268
Decatur22431
Clinton2221
Grant19121
Noble18921
Harrison18721
Dubois1852
Greene16724
Warrick16426
Dearborn16421
Henry1619
Monroe16011
Vigo1477
Lawrence14423
Miami1391
Putnam1337
Jennings1274
Orange12422
Scott1183
Ripley1126
Franklin1068
Kosciusko941
Carroll922
Daviess8216
Steuben802
Marshall761
Newton7410
Wabash722
Wayne715
Fayette684
LaGrange602
Jasper581
Washington521
Fulton471
Rush452
Jay440
Randolph433
Jefferson411
Whitley402
Pulaski390
Clay391
Owen341
Brown331
Sullivan321
Starke313
DeKalb311
Perry260
Huntington262
Knox250
Tipton251
Benton250
Wells240
Crawford230
Blackford211
Switzerland190
Fountain182
Spencer171
Posey170
Parke170
Gibson142
Ohio130
Warren121
Adams121
Vermillion90
Martin90
Union80
Pike60
Unassigned0154

Ohio Coronavirus Cases

Data is updated nightly.

Confirmed Cases: 33006

Reported Deaths: 2002
CountyConfirmedDeaths
Franklin5414239
Cuyahoga4060221
Marion262323
Hamilton2492128
Lucas2152229
Pickaway204635
Mahoning1347171
Summit1277159
Butler81725
Stark69790
Columbiana65750
Lorain65358
Montgomery60915
Trumbull54045
Belmont40212
Miami35130
Warren34020
Tuscarawas3212
Portage31657
Medina30719
Delaware30213
Ashtabula28332
Lake28212
Wood27745
Geauga25829
Wayne25250
Fairfield2463
Clark2256
Licking21410
Mercer2003
Clermont1935
Allen19131
Richland1873
Erie1595
Darke15616
Madison1417
Washington11718
Crawford1063
Morrow1041
Greene945
Ottawa927
Putnam8714
Monroe7311
Sandusky7010
Hocking694
Ross662
Auglaize643
Jefferson632
Huron551
Williams521
Hancock481
Union460
Muskingum450
Clinton430
Hardin410
Shelby402
Logan370
Fayette370
Wyandot362
Fulton350
Guernsey320
Defiance322
Preble301
Lawrence280
Holmes281
Carroll282
Champaign271
Coshocton260
Brown251
Knox231
Seneca192
Highland191
Vinton191
Ashland190
Athens181
Perry181
Henry150
Scioto150
Paulding130
Jackson120
Harrison100
Adams81
Gallia71
Van Wert60
Meigs60
Pike60
Noble50
Morgan50
Unassigned00
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