WABASH, Ind. (WFFT) -- At first glance, seven year old carson mckee is like every other boy his age. When describing some of his favorite things, he says "I like soccer, basketball, baseball. Playing outside."
However twice a day, every day, Carson has to wear a special vest that gently shakes him, to break up mucus in his lungs. He also has to take special medicine because he lives with Cystic Fibrosis.
Cystic Fibrosis is a rare disease, with only about 30,000 people in the U.S. diagnosed with the disease that can clog the lungs and other organs with mucus, causing death.
Carson’s father Jarrod says the diagnosis came at his one week checkup.
"The news was a little alarming, it was scary," Jarrod explained. "We didn’t know what it meant for Carson. What it meant for his future and what it meant for our family."
Thanks to medical research, treatments have been developed to help people with CF and it means Carson will live a long life, and the Mckee's have contributed to that research.
The family, along with support from the Wabash County community, host a fundraiser, selling Carson’s "famous" homemade pulled pork sandwiches, raising money that is donated to the Cystic Fibrosis Foundation.
"We wanted to do one thing as a family, it was to give Carson a long, full life with us, but also make sure no other family felt they way that we did that day."
2020's fundraiser was put on hold thanks to COVID-19, but this year, they’re doubling up their goal, wanting to raise $20,000.
The Wabash County Sheriff Department have helped with the fundraiser every year, this year they’re helping promote the fundraiser with the help of one of their own who also has CF.
"We added Matt (sheriff deputy with CF) into it. He was very glad to help because he enjoys that they do this to help raise money for Cystic Fibrosis."
Carson says he’s happy his pulled pork is so well known, but also that he can help people like himself, saying "It’s fun selling pulled prok sandwiches and helping people with CF."
Details of the fundraiser are below. Jarrod says it's best to get their early because some years, they sell out in 30 minutes.
However, they are increasing the food to help meet the demand and raise more money.
When: Friday, May 28th, 2021 at 11:30 a.m. until sold out
Where: Vacant Miller Home Furnishings store, 1100 N. Cass Street, Wabash, IN. 46992