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Fort Wayne child in need of life-saving transplant

Imagine being diagnosed with kidney disease from birth and not knowing how long you're going to live. That's 3 year-old Henry Whitacre's dilemma everyday.

Posted: Feb 5, 2018 7:33 PM
Updated: Feb 7, 2018 8:57 AM

FORT WAYNE, Ind. (WFFT)- In Fort Wayne, volunteers are raising funds for the Children's Organ Transplant Association (COTA).
One of the children the organization is helping is 3 year-old Henry Whitacre.

"Henry's endured anestia for a surgery probably 26-27 times,"Emily Jones said.

He struggles to live like other children his age, going to dialysis 4 times a week.

He has end stage renal disease, specifically bladder outlet upstruction, which happens when little boys are developing.

"The tube that connects his bladder to the outside world, the urethra, had a blockage in it. 

That blockage means there was a lot of back pressure on his kidneys and his kidneys didn't develop fully normally as a result of that," Amy Wilson, Physician for Riley Children's Hospital at Indiana University Health, said.

Emily Jones and Kevin Whitcare are asking individuals to help them with upcoming fundraising activities and donations to bring awareness to child kidney failure and help save little Henry's life.

The family and volunteers are hoping to raise at least $75,000.

The money does not go to the Whitacre family, but goes to COTA in Henry's honor. The family gets reimbursed off of the funds raised.

"We didn't think we'd be this far out still waiting for a kidney, working toward a kidney, much of that had to do with his size. He's a little fella," Barbara Jones, Henry's grandmother, said.

To kick it all off they're having a dinner silent auction benefit type of event on March 24th that's going to be at downtown restaurant Columbia Street West.

Donations can be sent to the Children's Organ Transplant Association  at 2501 West COTA Drive, Bloomington, IN 47403.

Checks or money orders should be made payable to COTA with "In Honor of Team Henry Jordan" written on the memo line of the check. 

Secure credit card donations are also accepted online at www.COTAforTeamHenryJordan.com.

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