Families walk to raise awareness of ALS

ALS affects as many as 30,000 people in the United States. There is no cure, but people in Fort Wayne want to change that.

Posted: Oct. 13, 2018 9:30 PM
Updated: Oct. 15, 2018 6:45 AM

FORT WAYNE, Ind. (WFFT)- ALS affects as many as 30,000 people in the United States. There is no cure, but people in Fort Wayne want to change that. 

Tina Kaetzel with the ALS Association of Indiana said she's on a mission to connect with families affected by the disease, and the walk is a part of that mission. 

"This walk is amazing. We want to bring awareness to Northeast Indiana, create that sense of urgency that we still have a lot of work to do," Kaetzel said. 

Dave Clevenger was walking for his son, Mark. 

"In Mark's situation, he's steadily deteriorated. We saw signs of it as far back as 2016," he said. 

Mark's diagnosis is rare because he's only 34. 

"Usually it's older people, older than 34. Old people like me," Clevenger said. 

Meanwhile Casey Pickelheimer walked with a team for her mom, Vicky. 

"She's very funny. She's very strong and very independent. She always wants to do things by herself, but we need to help her sometimes. She's just wonderful," she said. 

The huge team behind Vicky is holding a fundraiser Sunday at 1:00 p.m. at Wizard's World in Huntertown. 

Eight-year-old Makenna Dowty is also walking for her mom, who was diagnosed back in July. 

"I want to show her all the love and support that I can," Makenna said. 

To learn more about how to raise awareness of ALS, click here. 

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