17 year-old triathlete travels 3,000 miles for rare disease awareness

The National Institute of Health said in Indiana alone 110 people have been diagnosed with primary periodic paralysis. Many people haven't heard of it and just like other rare diseases a lot of people don't even know they have it until they are diagnosed. A 17 year old from Hawaii came all the way to Fort Wayne to spread awareness about this disease by doing what he loves- riding his bike.

Posted: Jul 30, 2018 7:08 PM
Updated: Jul 31, 2018 9:09 AM

FORT WAYNE, Ind. (WFFT)- This summer marks a 3,000 mile solo cycling journey across several states to advocate for people with rare diseases.

17 year old Gabriel Low is making this trip with the inspiration of his mother pushing him. They both have a rare disease called primary periodic paralysis.

"Periodic paralysis is a genetic condition that can cause attacks of weakness and paralysis in your muscles and it's really rare. There's about 5,000 who are diagnosed in the U.S,"Low explained.

Because of early diagnosis, Gabriel's been OK, but he knows there are many people out there who aren't.

"I had an awakening moment when I had a paralysis attack in March and I paralyzed. It was during a triathlon race actually, and I finished the triathlon and I paralyzed totally,"Low said.

That wake up call started this journey.

"I've been so lucky and blessed from my diagnosis, and given all these opportunities. Now I want to use those opportunities like my ability to ride a bike to go help others, and the best way to do that was ride across the country and talk to people along the way and spread awareness because awareness is what's really important,"he added.

One of the biggest challenges for people with PPP is having a correct diagnosis. A confirmed diagnosis can take as long as 20 years.

Rare diseases affect about 30 million people, and only 5% of diseases have treatments.

His trip will end in Cleveland, Ohio where he will compete in the USA Triathlon Age Group Nationals.

Indiana Coronavirus Cases

Data is updated nightly.

Cases: 926604

Reported Deaths: 15083
CountyCasesDeaths
Marion1262201958
Lake626901087
Allen52772747
Hamilton43283445
St. Joseph41475584
Elkhart33129488
Vanderburgh29927439
Tippecanoe26589247
Johnson23267415
Hendricks21902340
Porter21473341
Clark17150224
Madison17065379
Vigo15815273
Monroe14298190
LaPorte14108237
Delaware13771219
Howard13635262
Kosciusko11232134
Hancock10637160
Warrick10523176
Bartholomew10341167
Floyd10200202
Wayne9690218
Grant8939196
Morgan8734158
Boone8299109
Dubois7596123
Henry7469128
Dearborn745187
Noble7294101
Marshall7237128
Cass7097117
Lawrence6862150
Shelby6457107
Jackson643981
Gibson6036106
Harrison595585
Huntington591891
Montgomery5706102
DeKalb563591
Knox537599
Miami531983
Clinton527164
Putnam525367
Whitley516251
Steuben486367
Wabash477492
Jasper471961
Jefferson461991
Ripley444175
Adams439365
Daviess4064106
Scott394963
White386257
Clay382356
Greene380189
Wells379683
Decatur379595
Fayette367176
Posey354941
Jennings346356
Washington325847
LaGrange315774
Spencer313034
Fountain309753
Randolph305487
Sullivan299447
Owen279161
Starke272761
Orange272659
Fulton268851
Jay250634
Perry247451
Carroll241127
Franklin233637
Vermillion229750
Rush228930
Parke215220
Tipton206754
Pike202538
Blackford165634
Pulaski158751
Crawford142818
Newton140742
Benton139816
Brown132646
Martin126916
Switzerland123510
Warren113416
Union93511
Ohio77211
Unassigned0468

Ohio Coronavirus Cases

Data is updated nightly.

Cases: 1342777

Reported Deaths: 21471
CountyCasesDeaths
Franklin1502191556
Cuyahoga1327732318
Hamilton962791318
Montgomery659161136
Summit555141045
Lucas50248862
Butler46732653
Stark40741974
Lorain31004529
Warren29609328
Mahoning26462637
Clermont25206287
Lake24339416
Delaware22014143
Licking20180241
Fairfield20139221
Greene19955268
Trumbull19500508
Medina19478286
Clark17565325
Richland15949231
Portage15851228
Wood15438208
Allen13875256
Miami13549249
Muskingum12261149
Wayne11647237
Columbiana11344239
Tuscarawas10657265
Marion10509148
Pickaway10301128
Scioto10082126
Erie9618171
Ross9209174
Lawrence8516116
Hancock8298141
Ashtabula8180185
Geauga8066155
Belmont7966184
Jefferson7324168
Huron7253127
Union717849
Washington7037119
Athens681064
Sandusky6734133
Darke6559136
Knox6475121
Seneca6237137
Ashland5808112
Auglaize580488
Shelby5654101
Mercer552190
Brown551068
Defiance5361100
Madison535170
Crawford5299114
Highland527581
Fulton520082
Clinton515980
Logan503182
Preble4902110
Putnam4778106
Guernsey454661
Williams448281
Champaign436264
Perry432152
Ottawa431184
Jackson413260
Pike378941
Morrow369150
Fayette367652
Coshocton359466
Hardin350069
Adams348069
Gallia338054
Holmes3197108
Henry318868
Van Wert307170
Hocking291669
Wyandot276158
Carroll256752
Paulding236442
Meigs205242
Monroe185049
Noble164840
Morgan159228
Harrison151940
Vinton133918
Unassigned05
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